Hello Everyone! I am a 26 turning 27 year old woman who has suffered with SLE Lupus and other Cross Connective Tissue disorders for the last 8 years. I have lost a sister to this terrible disease and I now find myself battling it as well. I have never really felt the need to go outside my own support system to find comfort, but I currently have been coming across some difficult trials that really seem to try my Faith and self esteem. I have never blogged before so this is all very new to me. I decided that right now that this is a time in my life that I am really needing encouragement and advice from fellow people who are also dealing with all the trials and heartache that accompanies this awful and frustrating disease. I have quiet a story on how I was diagnosed with Lupus and feel the need to share it with others.
I guess, I have signed up to blog because more than anything I just need a way to vent out the feelings that weigh heavy on my heart and on my mind. I also was suggested by a friend who is fighting her own battle with cancer that this may be a way for me to meet other young woman who may be going through the same battles I find myself in. I also have realized that it's in the moments that I can encourage and reach out to others that somehow those words find a way back to my own ears and speak to my own heart. I'm really excited to have found this website and I look forward to reading and sharing stories, information and ideas with everyone.
In Friendship,
Coolbeans
3 comments:
Hi Coolbeans:
First, let me say ... what a great moniker. i use that expression all the time.
Let me introduce myself ... my name is Wick Davis and I'm with the Lupus Foundation of America. I came across your blog and wanted to say hi. I'm in the process of reaching out to other lupus bloggers. I was wondering if you'd be interested in exchanging links to one another's blog. You can read the LFA blog here http://lfa-inc.blogspot.com. I would love to talk more with you. You can reach me at davis@lupus.org. I hope to hear from you. best, Wick
hey there I actually posted on the second comment first. I am interested also on hearing how you were diagnosed. I will share with you... my experience as well. by the way it posts me as my blog name which is not public at this time because it is underconstruction mentally and visually...lol.... not sure if i wanna really blog and what exactly i would blog about!
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